THE MUSCULAR DYSTROPHY ASSOCIATION OF NEW ZEALAND INC.
About Us
The Muscular Dystrophy Association of New Zealand (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions and those who support them. We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.
Our Vision
Freedom beyond limits
Our Mission
Promoting freedom of choice and a responsive society
Our Values
Sustainable -Toitūtanga
Empowering - Whakamanatanga
Proactive - KÅkiritanga
Connected -TÅ«honotanga
Neuromuscular Conditions
We support our members who have a wide range of mainly inherited, rare muscle wasting disorders that fall under the broad umbrella term “neuromuscular conditions”. Our members are of all ages and backgrounds, as symptoms can appear at birth, or for others, not until much later in life. Neuromuscular conditions are unpredictable, with limited treatment options.
Our logo is a person shown in the form of DNA. The double helix represents the genetic component to many of our conditions and acknowledges the whakapapa or family histories, which are woven through the stories of our members.
Contact Us
We have four regional branches that are supported by the national office based in Auckland. Together, we support individuals, families and whÄnau by providing specialist information, practical resources, personalised support, peer to peer networks, advocacy, and campaigns for improving public awareness of rare neuromuscular conditions.
Through our research trust, we work to improve care standards and offer hope for the future by funding research and facilitating access to clinical trials.
To find out more about the conditions we cover and the services and support we can offer, visit www.mda.org.nz or contact our national office toll free on 0800 800 337, or by email info@mda.org.nz.
Support Us